We met with J and his mum at their house to introduce the idea of Live! to J. J’s mum explained that he was terminally ill and so she was keeping him close to her at all times. During the meeting J was sitting counting pennies from a massive jar and his mum said that was all he did when he was at home.
J started at Miss It Miss Out (MIMO – our after school club) when he was 11 years old after being referred by his family support worker, as she was concerned that he was just going home alone after school and not engaging with anything, or anyone, else. She felt that he was lonely and becoming increasingly isolated.
We met with J and his mum at their house to introduce the idea of Live! to J. J’s mum explained that he was terminally ill and so she was keeping him close to her at all times. During the meeting J was sitting counting pennies from a massive jar and his mum said that was all he did when he was at home.
We met with L to tell him all about Live! and to explain all about our exciting activities. L uses a wheelchair and required full personal care. This included a peg feed which staff at Live! would need to be trained to use. L also had no communication except for ‘eye points’ (up for yes and down for no). We did the peg feed training and L started with us on the 2014 October 50 Days of Fun. He attended for a couple of days to begin with to see how it went and then, after realising how much he enjoyed it, he started attending MIMO every week.
L was 18 years old at the time and he had never engaged with his own peer group before. He had only really spent time with his mum and dad and immediate family so joining in with ‘new’ activities was a scary experience for him. We quickly realised what he liked and disliked by how he reacted to activities (facial expressions, fluttering eyelids etc.) We taught him to use his hands to tell us ‘yes’ or ‘no’ when he couldn’t use his eyes. This took us about 4 months but we got there in the end! We tried to tailor as many of the activities around L and all of the other children and young people as much as possible. If it was an activity that was not possible for him to access i.e. cooking in the kitchen then he would cook as much as possible outside of the kitchen and another young person, MG, would very often take over his part in the kitchen. MG would help L out a lot during activities and they became really good friends both at MIMO and at our other clubs.
L has now moved on from MIMO. He has moved to residential college and so we don’t see him very often. We get regular updates from his mum and dad though on his behalf and he’s doing really well which is great to hear and we are hoping that he will visit us again when he is home during the summer.
However, when you get to know her you realise that all of this is just the side effect of her medication and her disabilities and, most of all, her need to just ‘fit in’ with society.
When we first met her, G said, “the thing that I would most like in the whole wide world is to just chill out with my friends”. The past year has been particularly difficult for G. She moved into 6th form at school and struggled to come to terms with the need to act more maturely and to take responsibility.
This impacted on her home life and she started to take her frustrations out on her mum. Mum spoke to us about it and asked if we could help. We started working with G, building up her confidence over time to the point, when in February this year, she embarked on the National Citizen Service Programme (with support from a staff member from Live!). G went on a group residential trip to Doncaster where she stayed for 4 nights doing a range of outdoor/indoor team activities. Then on her return, she undertook 3 weeks of First Aid training, employability training, Social Action Planning and fundraising for a charity of her choice. All this was done as part of a team (most of the other members were young people from mainstream schools). G was wholly included and said, for the first time in her life, she truly felt accepted! She chilled out with her ‘friends’!
As a result of our support and her hard work G is now much more mature, she is better behaved and is focused on her future.
Live! Cheshire
New Scene Centre
Limewood Close
Chester
CH2 2HD
Copyright Live! Cheshire 2019
Charity number: 1160972